Health Related Quality of Life in Survivorship

In the context of cancer survivorship, health-related quality of life (HRQOL) refers to the degree to which the cancer or its treatment impacts the survivor’s life. Assessed by self-report, HRQOL is by nature subjective, and complements traditional biomedical measures (e.g., survival, treatment response). Thus, HRQOL is a critical component of understanding well-being in survivorship. HRQOL is multidimensional, encompassing physical and occupational functioning, psychological states, and social interactions. Importantly, we have focused on HRQOL across the cancer continuum and in groups across the age spectrum, from adolescent and young adult cancer survivors to middle-aged and older adults. One recent project focused on developing a comprehensive measure of adolescent and young adult survivors’ HRQOL.

 

Park, C. L. (2015). Integrating positive psychology into health-related quality of life research. Quality of Life Research, 24, 1645-1651.

 

Park, C. L., Hale, A., Wortmann, J., Blank, T. O., & Cho, D. (2014). Assessing quality of life in young adult cancer survivors: Development of the Survivorship-Related Quality of Life Scale. Quality of Life Research, 8, 2213-2224.

 

Smith AW, Bellizzi KM, Keegan THM, Zebrack B, Chen VW, Neale AV, Hamilton A, Shnorhavorian M, Lynch CF, and the AYA HOPE Study Collaborative Group. (2013). Health-related Quality of Life of Adolescent and Young Adult Cancer Patients in the United States: the AYA HOPE study. Journal of Clinical Oncology, 31, 2136-2145

 

Jensen RE, Arora NK, Bellizzi KM, Rowland JH, Hamilton AS, Aziz NM & Potosky AL. (2013). Health-related quality of life among survivors of aggressive non-Hodgkin lymphoma. Cancer, 119, 672-680

 

Cho, D., Park, C. L., & Blank, T. O. (2013). Emotional approach coping: Gender differences on psychological adjustment in young to middle-aged cancer survivors. Psychology & Health, 28, 874-894.

 

Park, C. L., Cho, D., Blank, T. O., & Wortmann, J. H. (2013). Cognitive and emotional aspects of fear of recurrence: Predictors and relations with adjustment in young to middle-aged cancer survivors. Psycho-Oncology, 22, 1630–1638.

 

Bellizzi KM, Wilder Smith A, Schmidt S, Keegan T, Zebrack B, Lynch C, Deapen D, Shnorhavorian M, Tompkins B, Simon M. (2012). Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer, 118, 5155-5162

 

Park, C. L., & Blank, T. O. (2012). Associations of positive and negative life changes with well-being in young- and middle-aged adult cancer survivors.  Psychology & Health, 27, 412-429.

 

Park, C. L., Bharadwaj, A. K., & Blank, T. O. (2011). Illness centrality, disclosure, and well-being in younger adult cancer survivors. British Journal of Health Psychology, 16, 880-889.

 

Bellizzi KM, Smith AW, Reeve BB, Alfano C, Bernstein L, Meeske K, Baumgartner KB, Ballard-Barbash R. (2010). Posttraumatic growth and health-related quality of life in a racially diverse cohort of breast cancer survivors. Journal of Health Psychology, 15, 615−626.

 

Park, C. L., Zlateva, I., & Blank, T. O. (2009). Self-Identity after cancer: “Survivor”, “Victim”, “Patient”, and “Person with cancer”. Journal of General Internal Medicine, 24(Supplement 2: Special issue on survivorship), S430-S435.

 

Bellizzi KM, Latini DM, & Cowan, JE, Duchane J, Carroll PR and the CaPSURE Investigators. (2008). Fear of recurrence, symptom burden and quality of life in men with prostate cancer. Urology, 72 (6) 1269-73.

 

Clauser S, Arora N, Bellizzi K, Haffer C, Topor M, Hayes R. (2008). Disparities in HRQOL of cancer survivors and non-cancer managed care enrollees. Health Care Financing Review, 29 (4) 23-40.

 

Edmondson, D., Park, C. L., Blank, T., Fenster, J. R., & Mills, M. A. (2008). Deconstructing spiritual well-being: Existential well-being and HRQOL in cancer survivors. Psycho-Oncology, 17, 161-169.